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strength is made perfect in weakness Archives - Pointes of View

THE REMARKABLE JOHN ORFINO

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John Orfino or as his grandson Espen knows him, Geed, is a remarkable man. We got caught up in room 9Y20 at the General Hospital in Edmonton this week where Cafe Mochas from MacDonalds were our beverage of choice. John has ALS. John and ALS Amyotrophic Lateral Sclerosis (ALS) is a neurodegeneration and is rapidly progressive. Classic symptoms of ALS consist of progressive painless muscle weakness and wasting. That’s the clinical definition of a disease that is a devouring beast. Some families call it “a hell on earth.” Two out of a hundred thousand people are affected by ALS. When John told me in 2015 that he was diagnosed with ALS he kidded about being one of the “lucky ones.”…

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